On behalf of Mast Therapeutics, and as a practicing registered nurse, patient advocate and person living with sickle cell disease, I’d like to share important tips to prevent a summertime crisis so that patients, their parents and caregivers may be aware.
Top five summertime crisis triggers, and helpful tips, include:
1. People with sickle cell disease are at high risk for dehydration since they require an increased amount of liquids. Drink lots of room temperature water, and carry a bottle of water with you.
2. Changes in temperature can lead to crisis since people living with sickle cell disease have an increased sensitivity to cold (extremely cold air conditioning) and heat (extremely hot weather outside). Avoid becoming over-heated in the sun by resting in the shade (under an umbrella or tree) and staying hydrated. Don’t forget to wear a hat. Keep light clothing layers readily available for any changes in temperature—such as a cool, unexpected breeze when the sun sets. Before walking into an air-conditioned home, make sure to put on a sweater to allow your body to adjust to the temperature change.
3. Swimming is a quintessential part of summer. But, it’s best to avoid cold pool water. Wear a wetsuit, which will manage your body’s temperature. Or, ensure the pool water is warm in temperature. When getting out, wrap yourself in a warm towel.
4. When traveling by plane, the high altitude may cause a crisis. Take your pain medication onboard, walk the aisle and do leg exercises (hourly) to prevent leg blood clots. If needed, use a cane and ask for wheelchair assistance. If you have breathing problems, you may require a portable oxygen machine. Also, plan some rest days after landing at your destination to just relax.
5. While outdoor sports (football, volleyball, soccer, etc.) are loads of fun, these can lead to loads of trouble and a painful crisis if you don’t take precaution. Take frequent breaks, relax, rest and stay hydrated.
It’s important that you talk to your doctor, openly and regularly, about sickle cell disease, and learn how to best manage your condition and reduce the complications.
To connect with more than 18,000 people affected by sickle cell disease across the globe, and share your voice, please join the largest online, non-profit community support group “Sickle Cell Warriors” at https://www.facebook.com/SickleCellWarriors
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